WHAT WE DO
Advocacy and Policy Influence
We are devoted to protecting the rights and promoting the inclusion of individuals with Spina Bifida and Hydrocephalus. We engage in legislative advocacy to advance policies that support our cause and foster community partnerships with local and international to strengthen our advocacy efforts.
Our awareness events, such as World Spina Bifida and Hydrocephalus Day and World Folic Acid Awareness Week, provide a platform to highlight pertinent issues and promote advocacy initiatives.
Our team is dedicated to making a positive impact on the lives of those by these conditions. We strongly believe in equal opportunities and access to resources for all, and our advocacy efforts are aimed at creating a more inclusive and supportive society. We work tirelessly to ensure that the voices of those affected by Spina Bifida and Hydrocephalus are heard, and their needs are met.
Education and Research
We are committed to enhancing the quality of life for those impacted by Spina Bifida and Hydrocephalus. We strive to achieve this goal through a range of initiatives, including public awareness campaigns aimed at educating the community about these conditions, as well as workshops, seminars, and training sessions for healthcare providers, educators, and the general public.
Our medical outreach programs provide diagnosis, treatment, and follow-up care in underserved areas We also offer specialized training for healthcare providers to improve the quality of care for those with these conditions. Furthermore, we are dedicated to promoting and supporting research on the causes, prevention, and treatment of Spina Bifida and Hydrocephalus.
Support Services
We provide comprehensive support to individuals and families affected by medical conditions. We offer a range of services, including counseling and support, to help individuals with the challenges of their condition. Our resource center is a valuable source of information, educational materials, and referrals to services, designed to help individuals and families navigate the complex healthcare system.
We also provide financial assistance programs to help cover the costs of medical treatments and assistive devices. Our team is committed to providing compassionate care and support to all those who seek our services. We recognize the importance of having a strong support system and are here to help individuals and families every step of the way.